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February 14, 2012 by Julie Moon
Tomorrow marks 2 weeks since surgery. The incisions on my back side are healing nicely. I do still have my two hip drains that I will keep for 2 more weeks. They are a pain and they keep me from feeling like a normal person. I can’t wear normal clothes because they are bulky and have to have room for them. I will be sooo grateful when I am able to get rid of them.
The right breast is healing well. It looks so normal and the nipple looks untouched. The left breast is a bit gross right now. Because I had to have the sentinel node biopsy on that breast it complicated the surgery a bit. It has a huge scab over the nipple that we are keeping covered with Silvadene (Silver Sulfadiazine) to help it heal. Eventually the scab will come off and hopefully the nipple will have survived. I have no idea how long this will take. I am grateful my mom is here because honestly I can’t even look at that nipple right now. It makes me a bit nauseous.
I have to wear a bra 24-7 (minus showering) and though it’s stretchy and “soft” it’s getting to be very uncomfortable. I have to wear it for another two weeks as well.
My breasts today feel stiff and tight. Different than they have felt so far. It is so weird to have them and not be able to feel them. It feels as if I have something strapped to my chest. I am adjusting. I am sleeping better. Did I mention I can’t wait until these drains are gone. Seriously hate that part.
Category The Journey | Tags: biopsy,medicine,nipple,pain,recovery | No Comments
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February 12, 2012 by Julie Moon
I have had a very hard day. I’ve been having adverse reactions to the pain medications that I have been taking. I feel so overstimulated and prickly and uneasy from the inside out. Thankfully we have decided to quit taking these meds and try something different tomorrow. It is an awful feeling…like when you have a limb fall asleep…that prickly feeling as it’s waking up…that’s what I feel all over my body when I take those medications. So goodbye Percocet and Lortab. May I never need you again in this lifetime.
In the middle of the day was a special treat. My sister paid for a local woman to come over and give mom and I pedicures here at the house. It was so sweet and relaxing for the most part. My pain meds caused the end to get a little weird because my senses were overstimulated and I could hardly breathe…everything smelled so chemically strong even though it wasn’t. I did sleep this afternoon and though that was good I still feel awful and can’t wait for these meds to be GONE from my body.
I felt as though the whole day was ending on such a sad and sour note. I was feeling down and very sorry for myself. It’s in these moments that I feel regret for choosing this path. I feel sad that I don’t have to be feeling this way but put myself in this situation. Let’s just put it this way…it’s not a good place.
And then tonight around 9 pm. I got a message in my facebook inbox. The person is my friend but not someone I regularly see or speak to. We had been more involved in each other’s lives before there were 6 children between us. Our paths have crossed from time to time but I did not know her story. Tonight she shared her story with me. She wrote about her mother’s breast cancer at age 45 and losing her father just a few years before that. Her mother survived that battle but has now been faced with another area they will biopsy. She had been talking to her mother about me and her mother decided to get the BRCA testing done. They are still waiting on results and then will decide on their path after those results are in. It was an amazing story but the line that really struck my heart was this.
“Following your story of empowerment has made me choose a path of empowerment over the path of ignorance that I have been on.”
I will sleep well tonight because my heart is full. Two women are DOING SOMETHING because I did something and wrote about it. Her sharing that with me today is helping me to keep on keeping on! It’s the sunrise on this dark day I’ve had today.
Category The Journey | Tags: biopsy,blessings,BRCA,breast cancer,decisions,family,fear,friends,medicine,pain,Sleep | No Comments
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February 10, 2012 by Julie Moon
I received an email from a friend this afternoon that brought me to tears. I hadn’t really given too much thought to how my friends were feeling during this whole journey. I have thought lots about my family but not specifically about my friends. She put her feelings into words so eloquently and it really made me think about the decisions that I make to include people in my hard times and rely on my friends. I thought this really needed to be shared.
“Thank you for being so willing to let your friends help out through this time, Julie. I know that it isn’t easy, but it’s been a gift to us in many ways. As people who love you, we could be feeling helpless and sad right now. But, by letting us bring meals to your family and help out where we can you’ve given us the gift of feeling useful. And, we worry for you…but we worry less because you’ve made us feel included in your journey and been honest about how you’re feeling. Less worry is always a gift. And, right now my kiddos are playing in their room, bringing food and cleaning the “houses” of their stuffed animals. Because the animals aren’t feeling well and “that’s just what friends do for each other, Mama.” I’m grateful that friendship, and both the offering of kindness and the very gracious acceptance of it are being so beautifully modeled by this circle of friends you’ve created. So thank you for those gifts…they’ve been unexpected blessings.”
Category The Journey | Tags: blessings,food,friends,planning | No Comments
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February 8, 2012 by Julie Moon
I remember my mom talking about strange feelings in her breasts after surgery. It feels like I have an itch or it feels like a tiny sharp pain from time to time. I can’t itch it though. I have no feeling in my breasts. She said it was the nerves starting to reconnect. I’ll have to research that more. It’s a very strange feeling. The only thing I can compare it to is like when you have your mouth numbed for a filling and you can’t feel your jaw/cheek…that’s what my breasts feel like all day. It is WEIRD!
I also have lots of brusing so that I can feel and it hurts and oddly enough pain medicine doesn’t really do anything for the bruising pain. I had an oversized rib (dr said it was cartilage) that was located on my ribs on my chest and the plastic surgeon had to shave that away before he could do any reattaching of vessels and arteries. It is no longer there….that is weird. I am pretty bruised in that area as well.
The other thing that hurts lots tonight is under my left arm where they removed the two sentinel lymph nodes. It is so very sore.
I’m sure these won’t be the last thing that is weird!
Category The Journey | Tags: biopsy,fear,nerves,numb,pain | No Comments
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February 8, 2012 by Julie Moon
My Recovery Home
Day 7…finishing up the first week of this new life. What a journey it has been already. Last night was a very hard night. Neither I or my mom slept very well at all. We both had some crazy dreams and I was hot and uncomfortable most of the night. My body feels so tight and swollen and I’m just so ready to be done with these drains.
I saw Dr. Craigie, the plastic surgeon, first today. He greeted my mom and I with hugs and a smile. He prescribed silvadene for my nipple that I may lose. If I do lose it he will be able to recreate something that looks similar…we knew this was one of the risks. That side was the side that got the radioactive dye for the sentinel node biopsy so I think it was harder to see during surgery and not damage. He also shorted my drain tubes for me so that I don’t have as long of tubes that can potentially get pulled on something. I will go back Friday to see the PA and she will remove my two breast drains. That will be great! We will head home to Athens after those are pulled on Friday.
After we left Dr. Craigie we filled our prescription and then drove over to see Dr. Baron, the breast surgeon. I had taken my pain meds as well as a zofran before I left Dr. Craigie’s office and the two of those combined really get me loopy. I feel like I’m floating all over the room and feel like I lose feeling in my legs. It was relaxing but definitely a strange feeling. He is so warm and compassionate and greeted my mom and I with hugs as well. I feel so taken care of by this team of doctors. He examined me and seemed a bit disappointed with the left nipple’s healing as well. I know he was hoping that they both would survive and look as they always have. He did feel great about everything else so far.
I am happy with my recovery so far. It’s not pretty for sure…but I know that’s all part of the journey.
We grabbed a late lunch and headed back to our recovery home. It’s so peaceful and quiet here. I need to gear myself up for heading back to my house which is full of loud children. I love them but it will be a big change for sure. I was out from 10-4 today and I’m very sore and tired now. I hope I sleep well tonight and really am able to relax and rest.
Category The Journey | Tags: charleston,family,fear,plans,plastic surgeon,recovery,scar,Sleep,surgeon,travel | No Comments
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February 6, 2012 by Julie Moon
Yesterday I was discharged from the hospital. I was crying all morning because I was so scared to be away from all the “experts”. Noone checking my flaps hourly, monitoring my blood pressure, temp and having whatever drug I needed right on hand. My mom is an awesome caregiver but there was a certain comfort about being at the hospital.
But the best thing happened yesterday. Three of my best friends drove 5 hours just to come and visit with me for a while. They lifted my spirits when they were rock bottom. They helped my mom and I get moved over to our temporary Charleston house…a beautiful home on the marsh. Our friends have generously offered to let us stay here while I’m recovering and can’t leave Charleston. It was so great to have a distraction and have friends here to make me laugh and give my mom a little respite from having to do everything for me. Mrs. B, whose house we are at, cooked us a delicious dinner last night. She’s been such a wonderful hostess and made us feel so welcome. Mr. B and all the girls sat on the sofa and watched golf…I think it was the first time he had ever paid that much attention to what the golfers were wearing. Ha!
Last night, at bedtime, mom and I went into my bedroom and emptied my drains, changed my bra and put on fresh pajamas. I just cried and cried. I felt so broken and so disfunctional. My breasts are certainly bigger than what I wanted them to be and that made me feel disappointed. I have four drains coming out of my body which just makes you feel gross and weird. Around my breasts are so very bruised and sore. One of my nipples is probably going to blister and scab over…hopefully it will fully survive. But for now it’s all gross and blue from the radioactive dye I had injected to do the sentinel lymph node biopsy. My backside is crazy looking. You can still see all the sharpie on my skin from getting marked before surgery and then I have two long incision scars….LONG. And I had a little over a pound of fat removed from each upper gluteal area…so for now there is a bit of a divot. This is why there is a second and third stage to the surgery. It’s definitely not over and this is in no way the “finished” product. But no matter how many times you tell yourself that…you still feel mournful.
I tried to skype with my children last night and they were screaming and being loud and it was all too overwhelming for me. I had to close down the chat pretty quickly. Hopefully I can have a moment with the Mister soon to video chat just he and I. I miss him and just want to snuggle into his neck and have him stroke my hair. It’s good for me to be away from the kids because I think they would be more than I could handle this week. But my heart longs for him.
I think I’m going to have my mom take some progress pictures starting today. I think that will help me feel like I’m healing even when I don’t feel like it.
Oh….one more thing! Yesterday Dr. Craigie told me my pathology came back all clear…no cancer anywhere!
Category The Journey | Tags: blessings,breast cancer,charleston,family,fear,friends,mister,plastic surgeon | No Comments
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February 5, 2012 by Julie Moon
Hard day today. I feel scared to leave the hospital. I feel like I’m in pieces. I am sore all over. All I want to do is curl up on my side and sleep but drains keep me from being able to do so. My back aches and I know it won’t just be better tomorrow.
My friends are coming. I don’t think they will get the response they expect. I don’t want to talk I just want to sleep through the next week. I am sad. I am so glad they are coming. I know I can just cry and let it all go…it makes me so sad to think that women have to go through things like this without a huge support of people. If I feel like this and I have all the best friends in the world then what in the world must they feel like?
I won’t lie…being cut on both sides of your body is painful. My breasts feel engorged…like they don’t belong to me but that someone hung some sandbags on my chest. They are warm and look great though. They are connecting to my body. My back side hurts. I’m scared about riding in the car. It’s gonna hurt. I want to triple my pain meds and just be knocked out.
Category The Journey | Tags: BRCA,breast cancer,decisions,emotions,family,friends,pain,recovery,Scared | No Comments
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February 4, 2012 by Julie Moon
I’m feeling extra sappy tonight. I am so happy I did this. Even when it hurts. I couldn’t have done this without my village. Thank you everyone. I finally have a pain med that is working. Yesterday was SO HARD. Friday was a much better day. Though mom keeps saying she doesn’t know where we’d put more flowers I am so encouraged. They sit at the foot of my bed and remind me that I’m being thought of. I can’t wait to see my family and friends again. I worry about the Mister. He doesn’t always recognize what he is feeling. We watched Grey’s Anatomy tonight and that made me feel normal. I have eaten some of my yummy snacks. Tomorrow is shower day and I’m nervous about that. Here’s me giving all my friends and family big hugs and kisses.
Category The Journey | Tags: BRCA,breast cancer,charleston,emotions,family,friends,mister,pain,recovery,Surgery | No Comments
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February 2, 2012 by Julie Moon
Wow! This is the most surreal feeling I can imagine right now. I actually did it. The doctors said it went great. I’m sleeping well despite my awesome nurse checking in on me. The hospital is beautiful and my room is large. I do miss my babies and the Mister. I called my big girl around 8:30and had my best friend wake her up. It was good for both of us. I am so grateful my mom is here. I am so grateful I am so healthy that this makes it such an easier procedure. I have gotten sooooo many compliments on my beautiful quilt my friends made me. Life is good. My heart is full.
My surgery took 12 hours. Can you believe that? I am sore. Morphine And Valium to the rescue.
Category The Journey | Tags: big girl,blessings,BRCA,breast cancer,charleston,family,friends,medicine,pain,recovery,Sleep,Surgery | No Comments
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February 1, 2012 by Julie Moon
This is the place I will leave my risk of breast cancer. This is East Cooper Medical Center…a beautiful facility. We have met nothing but nice and helpful people. I was there twice today and it will become my new home through the weekend. I am so grateful that I was able to afford to travel here with my mom. I am so grateful for Dr. Craigie and Dr. Kline and Dr. Baron who will perform my surgeries. It will be mind blowing, life altering and life saving. I am so grateful that I do not have cancer and I get to tackle this as a healthy 34 year old woman. I am so grateful that the BRCA test was conclusive and I was able to confidently move foward with this step. I am so grateful for each and every person who is at home feeding, hugging, nurturing, driving, dressing, bathing, teaching, snuggling, and taking care of my dear sweet children.
I feel the prayers and positive energy of my friends. I am envisioning the candles that will be lit for me tomorrow. I pray for peace for my friends and family while I’m under. My wish is that tomorrow not only changes my own life but that it changes many people’s lives. I hope it inspires a woman to get her mammograms or research her genetics. I hope it encourages a husband to be completely supportive of radical preventative measures his wife may want to take for her health. I hope that it challenges more people to participate in the 3day and other events that support breast cancer research. We need more research. We need to find a cure.
Goodbye to the breasts I know and have loved…the breasts that have nourished my three children and have been loved by my husband. I am looking forward to meeting my new breasts…the ones that will carry me into my old age. I suppose if you want to be technical I have known those breasts all along since they will come from my back side. 🙂
Category The Journey | Tags: 3day,blessings,BRCA,breast cancer,charleston,plastic surgeon,surgeon,travel | No Comments
