Posts Tagged ‘BRCA’

  1. Fourteen Years Later

    February 1, 2026 by Julie Moon

    Fourteen years ago today, I was coming out of a twelve-hour surgery.
    A double mastectomy. Reconstruction. BRCA positive.
    My family was holding their breath, my sister was posting updates, and I was apparently winking at Joe before I fully woke up.

    It feels like a lifetime ago because it was.

    What I didn’t know then was that the surgery wasn’t the hard thing. It was just the beginning of a long stretch of becoming.

    Two years later, I decided I wanted to be healthy. Not in a dramatic way. Not as a transformation story. I started going to a gym for the first time in my life. I joined Tribe and began lifting weights with friends. I remember I couldn’t even do one sit-up without my trainer holding my feet down. I just kept showing up. Little by little, I learned how to move my body again and how to take care of it. I’m stronger now.

    Two years after that, I became a real estate agent. A decision that looked practical on the outside, but underneath it was about rebuilding confidence, purpose, and identity after everything my body and heart had been through. I had no idea what I was doing, and yet it changed our family in ways I couldn’t have predicted. Even more surprising has been the number of people I’ve been able to walk alongside, guide, and connect with along the way.

    Then life shifted again.

    One of my children went through an incredible crisis. The kind that rearranges your nervous system and your priorities. The kind that teaches you very quickly what matters and what doesn’t.

    Two years later, we moved. Not because it was easy or exciting, but because it was what was best for one of our children. It was hard on all of our kids, a huge change for our family. They were too young to fully understand why we were uprooting their lives. What they did know, even if only instinctively, was that we were pulling together. That we protect one of our own. I hope as they grow into adults, they look back and see that this is who we are as a family.

    And then, like it did for everyone, COVID came. The world shut down. Everything slowed, stopped, and changed. Again.

    When I look back, I don’t see a straight line. I see a series of hard seasons stacked back to back. Surgery. Recovery. Reinvention. Crisis. Relocation. Global uncertainty.

    Life is really hard.

    And here’s the thing I want to say out loud, because I think we don’t say it enough: going through hard things doesn’t make you special or strong in some shiny, polished way. It makes you tired. It makes you tender. It makes you human.

    But it also does something else.

    It teaches you how to take the next right step, even when you don’t know where the road is headed. When I’ve faced hard decisions, my mom always told me to place my hand over my heart and listen. To be still long enough to hear what I was supposed to do next.

    I didn’t survive the last fourteen years because I had a master plan. I survived because I kept taking the next step that was in front of me. I asked for help. I listened when my body and my family told me something wasn’t working anymore. I learned that starting over doesn’t mean you failed. It usually means you were paying attention.

    If you’re in a hard season right now, I won’t tell you everything happens for a reason. I won’t rush you to the lesson. I won’t minimize the grief.

    But I will say this: you are not behind. You are not broken. And this season will not be the only chapter of your story.

    Fourteen years ago, I was under bright lights in an operating room, being taken apart and put back together, rid of the parts of my body that were going to potentially kill me. I was being held together by other people’s hands.

    Today, I’m still here. Changed. Wiser. A little scarred. Still choosing to show up.

    Sometimes that’s the bravest thing we do.


  2. The Road We Walk

    January 10, 2025 by Julie Moon

    On the morning of October 28th, 2022, I walked into the hospital knowing I was about to take another major step in my journey as a BRCA 1 positive previvor. This time, it was for a robot-assisted total laparoscopic hysterectomy with bilateral salpingo-oophorectomy. In simpler terms: the removal of my uterus, fallopian tubes, and ovaries. It sounds clinical, maybe even detached, but the experience has been anything but.

    For those of you who have been following my journey, you know this wasn’t my first preventative surgery. I’ve taken many steps to reduce my cancer risk since learning about my genetic mutation. Each decision has come with layers of research, consultation, and soul-searching. But this surgery felt different. It felt final.

    The days leading up to the procedure were filled with questions. Will menopause hit me like a freight train? Will I lose a sense of who I am? Will I ever feel the same physically? The unknowns loomed large, even though I knew this was the right step to take for my health.

    The Day of Surgery

    The morning was a blur of hospital forms, kind nurses, and IVs. My husband was by my side, and his steady presence brought comfort, though I could sense he was quietly worried too. We’ve been through a lot together, and this was another chapter in our shared story.

    My mom was also with me on the day of surgery. She has a way of holding onto my emotions for both of us, carrying the weight of my feelings. Mostly because I feel deeply, but you’d rarely know. Her presence brought a sense of calm, even though I know she was worried as well.

    The procedure itself went smoothly, thanks to my incredible surgeon, Dr. Wilson. The robotics involved in the surgery sounded futuristic when I first learned about them, but seeing how minimally invasive the incisions were, I’m incredibly grateful for the advancements in medical technology.

    Recovery: A Lesson in Letting Go

    The first few days post-surgery were humbling. I’m someone who likes to move, to get things done, to keep going. But recovery forced me to slow down. I had to rely on my husband, my mom, and my support network in ways that didn’t come naturally to me. I had to surrender to rest.

    Emotionally, I found myself grappling with what this surgery symbolized. My uterus had carried three precious babies. It had nourished life. And now, it was gone. There’s a strange mix of grief and gratitude in that realization. Grief for what’s been lost, gratitude for the life and health I’m choosing to protect.

    Post-Op Findings: A New Layer of Complexity

    After the surgery, we received unexpected news. Dr Wilson said there was at least a borderline tumor in my right ovary, with the possibility of ovarian cancer. Pathology eventually showed that the tumor was protruding from the right ovary and measured approximately 3 x 3 cm. It was very concerning for an early malignancy or at least a borderline tumor.

    My mom and Joe found out this news before I fully woke up from surgery. They carried the weight of that knowledge as I recovered from anesthesia, waiting to share it with me until I was ready to hear it. I can only imagine how heavy that moment must have been for them. The decision to remove my ovaries wasn’t just preventative—it may have saved my life.

    Processing this news was heavy and emotional. There’s relief that we caught it early, but there’s also a lingering what-if that I’ve had to work through. I’ve been reminded, yet again, that listening to my body and being proactive about my health is essential.

    Hormones, Emotions, and All the Feels

    Let’s talk about menopause. It’s real, and it’s here. I had prepared myself for hot flashes, mood swings, and disrupted sleep, but experiencing it firsthand is a different story. I’ve had a few weepy moments, unexpected bursts of emotion that caught me off guard. I bought a couple of fans to keep in my purse for when my inside heater gets turned up.

    What I didn’t anticipate, however, was the unexpected pain I’d feel all over my body. Joint aches, muscle soreness, foot pain, and general discomfort seemed to appear out of nowhere. Additionally, I’ve noticed weight gain, something that has been both frustrating and emotionally challenging to navigate. These changes have reminded me that healing isn’t just physical—it’s mental and emotional too.

    I’ve started exploring hormone replacement therapy (HRT) with my doctor to see if it’s the right path for me. There are risks and benefits to consider, and I’m taking it one step at a time. The key, I’ve found, is to listen to my body and trust the team of doctors I’ve built around me.

    Gratitude for My Support System

    I couldn’t have made it through this without my people. My husband has been a rock, always supportive of this journey. My mom has been by my side, offering both practical help and emotional support. My trainer at the gym modified my workouts to ease me back into movement safely and learned more about pelvic floor than he probably expected. And my friends have reminded me to feel what I need to feel without judgment.

    It’s easy to downplay what we go through in the name of survival. But this was big. This is big. And I’m learning to honor that, to give myself grace in the healing process.

    Looking Ahead

    It took about a year to feel more normal again. The road to recovery was long, but I’m walking it with more peace than I had before. I’ve learned that bravery isn’t about not being afraid; it’s about taking the next step, even when fear is present.

    To my fellow BRCA previvors: we are warriors. Our decisions may not always make sense to others, but they are ours to make. I hope my journey offers encouragement and solidarity to anyone walking a similar path.

    Thank you for walking alongside me on this journey.


  3. Delaying This No Longer

    October 27, 2022 by Julie Moon

    Today, I am 20 days away from my 45th birthday. Tomorrow, I will go in for a robot-assisted total laparoscopic hysterectomy with bilateral salpingo-oophorectomy. This is hopefully the final surgery in a long list of preventative steps I have taken as a result of my BRCA 1 status. Research suggests that BRCA 1 patients have a high risk of ovarian cancer and perhaps also uterine cancer.

    As far as we know…nothing is wrong. I had my regular CA 125 blood work done and regular ultrasound that I do annually or biannually. Things looked pretty normal but the CA 125 levels were a little high but still in the normal range. Stephanie Allen, my gynecologist, and friend called me to say, “Please go see this gynecological oncologist and get his opinion.” So I did. And Dr. Wilson was pretty adamant that it was time. We spent a good long while talking through things and decided we would go ahead and schedule surgery.

    I have dreaded this one the most. I have lots of questions about how this one changes my body and life in general. What will menopause feel like? Will I gain weight? What hormonal changes will come? Should I do hormone replacement? What are the risk and benefits of that? How long will it take to recover? How long until I can lift weights again? Will losing my uterus cause all kinds of problems? So many questions.

    What I DO know…is this. I have a great team of doctors who I have consulted….again and again. Those great doctors have shared medical journals, notes, research, and more with me and have let me lead this step when I felt fully ready. I have a great support team. My wonderful husband and my mom will take great care of me physically. I have a pelvic floor therapist I have already spoken to that I will be meeting with post-surgery. My trainer at the gym is on board with modifying my workouts throughout my recovery. I am so grateful!

    It’s interesting to me that this surgery would be harder mentally than my breast surgery and reconstruction. That was WAY harder physically but somehow I was brave enough to take that step. So I know that I am brave enough to take this step.

    I think there is a bit of sentimentality kicking in this time. This precious body I was given has carried three babies. I am forever grateful to this body and all the ways it has nourished life. My mom even called me today to make sure I was doing ok emotionally with it all. I’m known to compartmentalize my emotions and not really connect with them sometimes. It’s ok…I have a couple of good “feelers” as family and friends who help me remember that this is a big deal.


  4. At Peace

    April 11, 2017 by Julie Moon

    I received an email last week. It’s really amazing to me how important the work of sharing your story is to people. This email really makes me so very happy. Just an email from a mutual friend who wanted to tell me about her journey.  Yes, I have written this blog for my daughters…but I also write it for every woman who just needs some answers. Peace to you all!

    “Hi Julie,
    Thanks to your mom sharing her experience with me and letting me know about your website, I am scheduled for surgery with Dr. Craigie on July 19th.
    I really didn’t think I wanted to do reconstructive surgery. A double mastectomy and 4 rounds of chemo took a toll on me back in 2014. But after meeting with Dr. Craigie in November of last year, I knew I had found the right surgeon . I felt at peace after my husband and I talked extensively with him about the different reconstructive options available through his practice.
    I just wanted to let you know how grateful I am for your openness about your journey.”


  5. Five Years

    February 1, 2017 by Julie Moon

    Today marks five years since my surgery.  I jokingly called it my boobiversary yesterday.  But it’s truly the anniversary of a bold decision. Five years free of worry, stress, concern and cancer.  Honestly when I step back and think about it…that time of my life feels surreal.  I hardly remember what it was like.  I have flashes of my recliner I recovered in.  I remember outfits that I wore that would conform to having drains.  I had drains…oh my…I do remember that.  I remember my mom showering me.  I barely remember my children during that time.  Every time I get ready to get in the shower though…I remember.  There are some serious scars on my body.  I have to constantly remind myself that the scars are worth it.  And this year…it hasn’t been hard.  Two of my friends have been diagnosed with breast cancer this year.  I have to remind myself to thank myself….to thank science…to thank my brave surgeons…to thank my incredibly supportive husband. I’m so grateful for all of the pictures that pop up on facebook memories this time of year. One of the biggest things I learned through this experience is the importance of your village.  There are dozens of men and women who stepped up to help my family during that time.  It literally brings me to tears to even mention it because it wouldn’t have mattered how bold or gutsy or whatever I was…if I had not the support of my community I could NOT have gone through with my procedure.  The quilt my friends all put together for me to take was literally one of the best gifts I have ever received.  The bins outside my door that people just came and filled up with food FOR A MONTH.  Friends who took my children so that I could rest….know that I think of this every time I see you.  The Bozards who let me live at their home, aka paradise, for two weeks! Two weeks they fed me, loved on me and my mom and let me overtake half their house while recovering from a seriously major operation. And my mom…without her this would not have been possible.  I am forever grateful. Forever.  What a journey we are all on.  To my friends and family…I love you.  Thank you.


  6. Helping Others Is The Best

    November 10, 2015 by Julie Moon

    I often have random strangers email me to ask about my experiences. It always makes me happy to be able to share my life with them.  To help them through some decision making and to clarify what exactly did I have done?  I had an opportunity recently and shared my experiences with one woman.  She wrote me back last week and it truly made my day.  Here is her email:

    It’s M.  I spoke to you a month or so ago about your experiences with Drs. Baron & Craigie.   I’ve been down to Charleston several times and plan to have a single mastectomy with GAP reconstruction using Baron & Kline.  (Kline had office hours the day I met with Baron so he’ll be the leading plastic surgeon and Craigie will be assisting.)
    I thought I was mainly going because of the plastic surgery option offered there, but then came to discover how warm and capable Baron is.   So now I have the utmost confidence in the entire team.  When Baron asked how I came to find out about him, and I mentioned your name, he said “Oh yea yea, the BRCA gene woman”.   So he does remember you.
    I just wanted you to know how thankful I am for both your blog and your willingness to chat with me about your surgery.  I was desperately looking for a reconstruction option that better suited me.    When I did a Google search on “GAP flap reconstruction atlanta”, your blog appeared.    Otherwise the options in Atlanta are non-existent.  I genuinely believe God lead me to you.   Your blog matters so thank you for continuing to keep it out there.
    I’m naturally a little anxious about the whole process but it still feels like the right choice for me.
    Thank you more than you know.
    M
    THIS IS WHY I AM OPEN ABOUT MY STORY!  This is not the first, second or even third woman I have spoken to personally about my experience.  This is how sharing  your life can change other’s lives.

  7. Ooph….

    March 28, 2014 by Julie Moon

    ovary

    Sometimes I like to ignore the fact that I have a BRCA 1 mutation.  The truth is that I actually forget.  I sometimes even forget that I have had 4 operations to rid my body of any risk of breast cancer.  I never forget when I’m undressed but fully clothed…I forget.  I have felt brave, smart and proactive while dealing with my mastectomy and reconstruction.  Now I must deal with the other risk factor that BRCA 1 carries.  I must face the fact that I have a super high risk of ovarian cancer.  And not only that I have a risk but there really isn’t any great system for monitoring ovarian cancer at this time.   Most ovarian cancer is caught late and the risk is just too great for me.  How incredibly sad would it be for me to do all the work I have to rid myself of breast cancer but be too scared to get my oopherectomy and then die from that.  I could never forgive myself.  So…April 1st…I have an appointment with my fabulous GYN to discuss my options.  I have researched hormone replacement and yet I still feel a bit confused.  I’m 36 and still have some time until menopause.  I’m scared of my body getting out of control.  I’m scared of gaining weight.  I’m scared of my eyesight getting worse.  I’m scared of my libido drying up.  I’m scared of feeling old and looking old.  Thankfully I’ve gotten over the fear of what it will cost because it always costs lots and I just pay it off as I can.  I do not fear recovery because heaven knows I’ve recovered from worse and I have an amazing village on my side.   Time to step up and get this done!


  8. Family Tree

    September 19, 2013 by Julie Moon

    tree

    It has never occurred to me to consider finding out about my BRCA status and then keep it to myself.  I suppose I’m a pretty open person.  My children were 9,7 and 3 when I had my sugery.  I couldn’t really hide that from them.  It was pretty obvious and significantly affected their lives.  But what if they were grown and out of my house?  What if I had the test and didn’t share that info with them?  What if I knew I was BRCA positive but didn’t want anyone to know?

    My oldest has asked me more than once “What if I have the gene, Mom?” and boy does that just force me to take a deep breath.  I reassure her that it’s not anything to concern herself with now and that when the time comes I will support her in finding out and I am confident that the technology will be completely different for her.  But there is no way that if she were a grown woman now I would not share this info with her.

    I fully support people dealing with things differently than I have…but I would want them to have all the information they needed to make an informed decision.


  9. Oh What a Jolie Morning!

    May 15, 2013 by Julie Moon

    jolie

     

    Today I can barely contain the thoughts in my brain.  Today Angelina Jolie, age 37,  announced to the world that she tested positive for the BRCA 1 mutation and had a prophylactic bilateral mastecomy and reconstruction.  Today Angelina Jolie shared something so vulnerable and still so controversial.  She told her children she was willing to do whatever she could to ensure that they don’t lose their mother too early like she did.  Today I gained so much respect for Brad Pitt and his supporting her through this.  It is no easy feat to watch someone you love make a decision that can be so deeply emotional and life changing.   I’ve been linked to her news more than a dozen times by friends.  My friends know my story but soooo many do not.  So many do not know what technology and research has made available.

    I replied on a facebook page with a link to my story and some of the comments were so interesting.  Someone posted this comment “It’s a very brave thing what she’s doing and her message! But logically this woman is loaded she can do anything she wants whenever she wants to! How are real normal woman going to afford having this done? Awareness or not its just completely unrealistic! Breast cancer runs high in my family but life would never give me the chance to escape the inevitable!

    My heart broke as I read this comment.  She might have no idea that health insurance has begun to pay for these procedures just in the last 10 years.  It is definitely still a concern that not all women have affordable health insurance.  This is an issue that touches so many more things than just breast cancer.  I think it’s just amazing that this is even an option now.  Before the mid 90s a woman who chose mastectomy didn’t have any option but to pay for a reconstruction out of her own pocket.   We are definitely moving in the right direction.

    The inevitable is that we all will die…it hopefully doesn’t have to be Angelina Jolie is 56 from breast cancer like her mother.   Yes, most breast cancer IS NOT genetic.  But man oh man if this testing and surgery allows me to see my grandchildren someday…all worth it.

    I needed this today in such a bad way.  I have been feeling so negative about my situation.  I’m still pissed off about that nipple but man…this is HUGE.  Angelina Jolie knows that this is going to come with lots of outsider opinions and comments but she decided she was going to SAY IT ANYWAY!

    Angelina’s op-ed article in the NY Times


  10. Distance

    March 28, 2013 by Julie Moon

    2012-02-08 14.23.03

     

    I am finding lately that I feel the need to distance myself from all things BRCA related.  It’s a very strange feeling.  I haven’t really been able to open up the facebook group to read posts and I haven’t been to the FORCE page at all. I know I could be helping others.  One of my newest BRCA friends has asked me to make a video and I just can’t bring myself to do it.  I am grateful…so grateful.   But every single day it is so very hard to look at my body.  It is so very hard to see those bright red scars.   It is so very hard to look at my left breast lacking a nipple and my right breast lacking volume.  I see every flaw in a way I don’t think I did before surgery.  Today I had to change the side of my body I wear my purse on because I have a spot on my back thigh that is sore all the time and the purse hitting against it finally became too much.  I look at these things and I realize so clearly that I had the opportunity to count the cost before I took the plunge.   If I had been diagnosed with breast cancer I would not have had that luxury.  But then sometimes it’s so painful that I CHOSE this.   It gets too raw and I have to distance myself from all of it just to make it through the day.  It is ALWAYS on my mind….EVERY SINGLE DAY.  It’s like background noise just humming in my brain.  I hope this is just a phase.

    And then today a friend posted on facebook about having to go back for a second screening after an ultrasound and I remember that feeling so vividly.  I am grateful for what I chose but good grief this isn’t easy.