Posts Tagged ‘waiting’

  1. Symmetry

    January 16, 2013 by Julie Moon

    No woman is really symmetrical.  We all know this.  But it’s something I believe we all desire.  It’s incredibly frustrating to try to shop for a bra when you’re not.  I was not symmetrical before surgery.  I thought given that we were starting from nothing that I would likely be symmetrical this time.  I am not…and even more so than before surgery.  I’m trying hard to not be critical of myself and what I have post surgery.  I’m considering some different options.  Praying for some clarity and peace.


  2. A Little Less Satisfaction

    October 3, 2012 by Julie Moon

    I have some of the same feelings about my breast reconstruction that I have about my wedding.  Let me explain.

    I got married 13 years ago.  This was before people had cell phones, digital cameras and blogs.  We barely had the internet back then.  Weddings didn’t seem nearly as creative as they are now.  If you hadn’t seen it before and you weren’t one of those super creative types you had a typical wedding.  Which is awesome…but let’s face it, not quite as cool as some of the weddings happening today.  It’s easy to get caught up in Pinterest and see beautiful weddings with creative ideas and wish you had “done that” for your wedding.  I get a feeling of dissatisfaction about my wedding…I don’t like it. I usually promptly close Pinterest  and the feelings go away.

    I have been having those same feelings about my reconstruction.  Technology and medicine never stops.  It is inevitable that breast reconstruction is only going to get better and better.  The choices available are going to blow my mind.  I know my mom has some of these feelings about her own reconstruction.  She had her surgery four years before my own and it has amazed us what was available to me that wasn’t quite as well known and/or available to her.  But I have to quiet that voice in my head that wonders if I should have chosen a different type of reconstruction.  I am happy with my reconstruction but I do have things that are still not quite right.  I know I have another surgery in November but I wonder if I will still have some of these feelings after that surgery too.  I want to help others but I think that there might come a point where I just have to quit looking things up and researching and being involved with the previvor forums for fear that my involvement will keep me from being satisfied with where I am.  I will never stop being an advocate for breast health, breast cancer research and breast reconstruction.  I do have two daughters…they may very well have the BRCA gene mutation.  My efforts to find a cure are for them as much as they are for me.

     


  3. Shopping Adventures

    July 11, 2012 by Julie Moon

    I have been shopping and shopping lately….for what you say?  Swimsuits.  This has been the most confusing year ever for me.  Not only do I have completely different size and shape breasts but my backside is shaped all differently around my hips. I have been totally lost when I’m shopping.  I feel like I am shopping for the first time.  I ended up buying TONS of stuff online and then taking back what didn’t fit.  Lands End has been my hero.  I also have a great friend who brought over piles of her swimsuits and let me try them on and she even let me borrow a suit for our vacation.  There is nothing quite like feeling good in a swimsuit.  I was so grateful to get to that point in my recovery.  I’m still not done and I have some things I dislike or need fixed on both breasts still….but I think I totally rocked the swimsuit at the beach.   I guarantee there wasn’t a person there who could tell the difference.  To all my fellow BRCA sisters…you’re going to look HOT when you get those darn drains out and get all those holes healed up…it really does happen!

    The summer has been so busy with things going on for the kids and vacation that I haven’t really thought about what lies ahead for me and my body.  I got a card today in the mail that I need to schedule a follow up with my breast surgeon.   I will probably plan a day trip to Charleston once the kids are in school again to see Dr. Baron and Dr. Craigie.  It’s almost time to map out my next steps whether they are this year or later.


  4. Rounding the corner on 3 weeks

    June 9, 2012 by Julie Moon

    I’m happy to be nearing another weekend and getting closer to being 3 weeks post surgery.  I think at 3 weeks I can stop wearing these horrid compression garments.  I’m hoping that I can start getting 1/2 of me in the pool (if the water in Georgia will ever warm up).  I’m feeling more like myself and I’m going to start working again next week.

    I’m driving…but it does make me very sore.

    My house ends up looking like this more often than not…which I’m slowly getting used to.  Remember I’m an organizer by profession.

    Though I am feeling better there is lots going on in my family.  Stuff with my father in laws health and also with my future brother in law and my mom.  I’m ready for the universe to give us all just a couple months off from all of it.  Somehow I don’t think that’s the direction we’re headed.

    As far as my recovery…things are looking on.  My left breast is not pretty but not infected and supposedly healing…though I’m skeptical that everything is going exactly right.  I gotta keep it bandaged and keep an eye on things.  Also…you’d be amazed how many times your children bang into your chest on a daily basis…trust me…it’s lots.  ouch.


  5. Perspective

    May 4, 2012 by Julie Moon

    Today I spent the morning at the hospital with my family.  My future brother in law was just diagnosed with testicular and renal cancer.  When I got the news from my sister I felt like someone punched me in the stomach.  This is my baby sister and her sweetheart.  How in the world could this be happening while they are falling in love and planning their wedding.  Just took the wind right out of me.  I feel sad and angry and a bit overwhelmed by it all.  ENOUGH WITH THE FREAKING CANCER!!!!  He had an orchiectomy surgery and we await the pathology from that surgery and then he will have his kidney biopsied next week.  I’m so grateful he is on the journey to taking care of all of this but goodness it is so intense.  It makes my heart break because he is such an amazing guy and I’m so grateful my sister has found him.

    But back to perspective.  As we were sitting in the waiting room I was surrounded by family and friends who have all had intense things in their lives.  Each of their stories is quite overwhelming honestly.  But there we all were…sitting there, survivors each in our own way.  I am grateful.  I am humbled by the whisper that is our life in this large world.  Our lives are a mist.  Be grateful….be still…be intentional.  Soak it all up because in an instant…we are dust.


  6. Stir Crazy

    February 17, 2012 by Julie Moon

    I’m going a little stir crazy I think. I’m turning into a grump. I’m not used to being at home and not being able to do much of anything while I’m here. All my friends know how I love to have a project and I have none. I keep walking around the house thinking about how much I need to repaint the walls in the hall and how I want my bedroom to be repainted. I wish I could be working. I sit in my recliner and stare at my backyard which is quite a nice place but in the winter it’s just not that pretty…needs mulch and a mow. I have several things I want to get framed and hang on the wall. I want to rearrange the computer on my desk. I want to fix my broken desk chair. I’m home non stop so I’m noticing every imperfection in my flooring and cabinets. I want to tidy the kids rooms and find the stopper to a piggy bank that is missing somewhere in her room. I want to do. I need to heal. This is hard.


  7. Making Plans

    January 25, 2012 by Julie Moon

    I am keeping myself really occupied making plans.  I have a full weekend planned and then it all settles in.  I wonder when I’ll get the nerve to pack my bag.  I think I’m ready. All my labs came back today and I have the all clear.  I still have to find myself a pair of slippers…ha!


  8. It’s not about the money, money, money

    December 10, 2011 by Julie Moon

    We had all the bills come in today for Scarlett’s broken foot in October…xrays are not cheap.  That on top of the cost of my biopsy, mammogram, ultrasound.   We still have so many medical bills from this year, dental bills, etc…and the funniest part is that we were really all well all year.   So today as we were discussing the cost of my surgery it came up that maybe we should postpone the surgery another year.  I really have no idea how we are going to work another $5000+ into our budget for 2012.  So very grateful that we have health insurance and that this is even an option so that I am not facing a $200,000+ cost…but wow…still a lot to swallow.  I’m feeling really overwhelmed by the cost.

     


  9. And We Have A Date

    November 29, 2011 by Julie Moon

    The Mister and I traveled to Charleston, SC this weekend to meet with the plastic and breast surgeons.  We left on Saturday and were able to have two days to ourselves…without children to reconnect and just enjoy each other before the appointment day.  I am so grateful for my sister watching the kids Saturday and Sunday…a wonderful babysitter helping out on Sunday night and Monday morning and one of my best friends coming over Monday after school to keep the kiddos, clean up the house and get everyone to bed before we got home.  What a network of great people I have supporting me on this journey.  It was reassuring to see that I could be gone for 3 days and things still function as normal.  I have to admit that I am probably more nervous about what is going to happen to my kiddos when I’m gone for 2 weeks than I am about the surgery itself…ah motherhood!

    The Mister and I were able to eat at some great restaurants, check out some local shops and the market and visit Folly beach at Sunset.  Did I mention we slept?  Oh the bliss of no children in the house kind of sleep…no naps interrupted by squeals of disagreement over the wii or by a toddler banging her fist over your head because she is hungry.  We slept well and we napped.  It was glorious!

    I feel peaceful.  I feel content.  I feel excited.  I feel nervous.  I feel happy.  I feel sad.  I feel grateful.  I feel blessed.  I feel spared.  I feel sure.  I feel crazy. I feel amazed.

    No wonder I can’t sleep yet tonight.

    February 1, 2012…a day that will change my life forever.


  10. Labor in Waiting

    November 2, 2011 by Julie Moon

    Here I sit in the examination room…waiting. I feel my heart pounding and every now and then my hands start shaking. I take a deep breath and calm my breathing. In and out…yoga breathing…listening to the exhale. One moment at a time. I always learned that with labor I just needed to work through one contraction at a time. Deeply focused on this one moment I will not let my mind race forward to the many other “contractions” that I have to face on this journey. This is not easy. I can’t wait to have a good cry on the way home.

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