Posts Tagged ‘charleston’

  1. Final Revision

    December 4, 2013 by Julie Moon

    I kept meaning to post about my upcoming revision surgery and it all happened quite fast so here I am on the other side posting now.  I found out that we had met our annual deductible for insurance and so I called Dr. Craigie’s office to see if we could quickly fit in a surgery before the end of November.  I really wanted to see if we could do anything to create a nipple for the left breast.  That nipple had not survived the first surgery and I really wanted something there to match the sides.  I also wanted to see if he could do anything to help with the fullness I was missing on the right breast.  I knew that this surgery was all about me feeling complete and completely put back together.  I traveled to Charleston to see him on the 18th….there and back in one day is an all day adventure but I had to see him this day.  We came up with a plan.  My mom and I drove back to Charleston on the 25th, spent the night and got ready for an early surgery on the 26th.

    What Dr. Craigie did was take a cone shaped graft of my right nipple and grafted that onto my left breast.  Blows my mind to think about how this could even work but it did.  He also harvested fat from my legs via liposuction to inject into my right breast.  This was challenging because I’ve been so diligently working out for the past year and so he had to harvest from 6 spots.

    I stayed overnight in the hospital and was discharged on the 27th (the day before Thanksgiving) with a compression garment that goes from my ribs to my mid shins.  I had no drains and only one dressing over the grafted nipple that they actually stitched down in 4 places so it wouldn’t move at all.  I also had a nipple shield that I have to wear to just keep any compression off the breast.

    Overall I’m doing well.  My legs are terribly bruised and very very sore.  I’m missing being able to workout and take my weekly trapeze class but I am beyond thrilled with the results of the surgery.  If you can handle the surgery the revisions are really so amazing and have done wonders.  I can honestly say that without the revision surgeries I think I would be really struggling more with my decision to do this.  I took some pictures of the bruising last night for those who might need to do lipo…it is painful.  But, I am so happy to know that everything in my chest is 100% “julie”…and not man made.  I’m like a transformer…just move my parts around to create a new look. HA!

     


  2. Over The Mountain

    December 12, 2012 by Julie Moon

    Today marks two weeks post surgery.  This was my third major surgery for 2012.  My mom jokingly calls this one my barbie surgery because this was the one where we fixed all the scars, cavernous hips missing large amounts of tissue and recreated a nipple (sort of…it’s nothing special).  I traveled to Charleston on the 26th with my mom.  She’s been so amazing this year for me.  She’s been through the toughest parts.  She has been the one to see me hurting the most and she’s been the one to receive the most complaints and general recovering Julieisms.

    We stayed with our friends again who we lived with for a week and a half after my first surgery.  It was so great to catch up. I stayed at their house so long before it felt like coming home in a way to visit them and sleep in “my old bed”.  We got up way early for surgery and like a doofus I took my antibiotics (on an empty pre surgery stomach).  I do this every time because they tell you to start them the day before and I’m such a darn rule follower that I took it that morning.  Nevermind that they were already going to give it to me in my IV at the hospital.  So I eventually threw it up in the preop waiting area. Oh well…maybe someday I’ll learn or remember.  I brought my beautiful quilt with me again as I waited.  Every staff member was wonderful, my doc, nurses, anesthesiology staff…they were all so great.  I don’t remember now how long surgery was…but I was out sometime after lunch.  So maybe 5 hours?  We stayed at East Cooper overnight so I could sleep on the air bed.  I was so grateful to not have to wake up and get up and get out of the hospital right after surgery.  That was such a pain the last time.  I have lots of blood pressure issues when standing up for days after surgery.  Then we came home to Athens and my mom came with me too.

    I came home with two drains and a compression garment from my knees to my ribs.  Joe lent me a laptop to so I could get cozy in the recliner while keeping up with the world and my friends.  It’s all a bit of a blur now.  Heck, life feels like that when I’m not on pain meds or recovering from surgery.  Mom helped me wrap Christmas presents. I tried to get most of my shopping done early so that I wouldn’t feel stressed about getting Christmas ready for three small children.

    My friends brought meals again…I feel like I owe them all a night out.  In fact I get emotional every time I think about the people who have served me this year.  Near and far I have felt so much love and support it is just more than my heart can hold and my heart bursts out through my tears every single time.   I truly know who my friends are this year.   I truly know that my family loves me dearly.  I know without a shadow of a doubt that this village I am a part of is good to it’s core and without them I would be lost.

    This past weekend the Mister had some work to do in Charleston so we planned weekend sleepovers for the bigs and Joe, Scarlett and I traveled to Charleston together.  Scarlett and I hung out in the hotel and she enjoyed jumping on the bed, watching tv in bed and buffet breakfast.  It was quite a treat to spend time with just one child…but I definitely missed my big kids so much.    We saw Dr. Craigie on Monday and he pulled both my drains! Thank the Lord!  He said I should wear my compression for another couple weeks.

    Though I still have lots of visible scars I feel like my body looks more like normal than it has in a year.  I feel close to whole.

    Tonight at dinner Savannah asked me “So which one of us kids do you think has the gene?”  *sigh*  I told her “I hope none of you sweetheart.”  She’s thinking lots about it I know.  It’s deep in that brain of hers that goes a million miles a minute.  I know my children won’t fully GET what I have done until they have a friend whose mother gets breast cancer, goes through chemo and heave forbid dies.  They are too young to have SEEN that yet in life.  But I hope they understand what this year of sacrifice has meant for them.   Scarlett said “Mommy I wish you weren’t sick.” and I know that I”m not “sick”.  I know that I’ve done this so I won’t ever have to be “sick” from breast cancer…like so many others in my family.

    I’m so excited about 2013 for them.  I’m so excited about a mom who isn’t traveling out of town for surgeries.  I’m so excited about a mom who doens’t have wounds and can get in the pool.  I’m so excited about a mom who feels great and can really enjoy the year with them.  My children and my husband have been strong troopers.  My husband…no words for the love and support he has given me through this decision and my journey.

    Whew…what a year.  My journey isn’t over.  There are still some more surgeries in my future regarding ovaries.  I still have some decisions to make but overall…this was the biggest mountain and I’m on the other side.  I didn’t climb the mountain alone and sometimes I was carried but we made it over the mountain.  God is good!


  3. November 27th it is

    August 21, 2012 by Julie Moon

    This is how I feel tonight.

    I had a great drive to and from Charleston today with my sweet husband.  We left early at 8 am and returned around 8:30 pm tonight.  It was so great to spend that time alone with him.  When you have three children you just don’t get that much undivided attention from your spouse.   We had a great spiritual discussion, laughed and I felt really loved by him.  I’m so grateful he is so supportive of this journey.  I couldn’t imagine trying to convince him that driving to Charleston for a surgery was/is the best plan for me if he wasn’t on board with the plan.

    Everything is looking good and healing well and softening as it should.  Dr. Craigie seemed pleased with how things looked and said I was ready to finish up.  We planned a surgery date for November 27th.  The kids will be back in school so it should be a little more manageable than my summer surgery date was.  We will finish my nipple reconstruction on the left side, fill up one part of the right breast that needs some fullness and then he will do a revision of the donor site.  That revision means they will open up the scar and take some fat from below the scar and fat from above the scar and fill in the concave area.  It will hopefully help things to be more proportional.    For those who don’t know the scar on my backside goes basically from hip to hip in a V.   This should be the final surgery I need.  It’s inpatient for one night only because they like for me to sleep on that special air filled bed for one night after surgery.   We asked if they could give us a special spa room since our deductible for the year has been “met” (though we are still slowly paying it to everyone).  They just laughed.

    It was interesting today.  Dr. Craigie is a laid back guy.  I love that about him but today it made me a little insecure to tell him all that I wanted “fixed”.  I think what I realized is that maybe he is used to dealing with “sick” people who are really not interested in more surgery to get themselves back to normal.  They are more focused on survival…which I get.  I wanted him to sell himself a bit more I suppose but overall I know that he will really do a great job.  I do miss Christina…the PA I had for the first stage.  She moved to another state to follow her husband to a new job.  I could sure use a chat with her tonight.  She was such an encourager.

     


  4. Planning for Stage 3

    August 20, 2012 by Julie Moon

    It’s been a long time since I posted.  Life has been busy.  The kids are all back in school and we are back in our routine.  Tomorrow the mister and I are headed to Charleston to meet with Dr. Craigie.  I wanted to see him in person now that I am all healed up from stage 2.  I plan to discuss our plan for finishing my nipple reconstruction as well as what he might be able to offer in regards to modifying the donor site.  My back side has some very large concave areas (obviously) and hopefully they are able to do a lift to fill in that area some and make it not so obvious I had tissue removed.  I have no idea what we will actually come away with tomorrow in regards to a plan.  I am looking forward to it though.  It brings me lots of peace to be able to see Dr. Craigie and know that I am making progress.

    I feel really normal most days.  I did yard work yesterday…lots of digging which I couldn’t have done a few months ago.  I’m working again and that makes me very happy.

    I wish I could stay in Charleston for more than a couple hours tomorrow…that place holds such a sacred place in my heart. I think I need an I “heart” Charleston teeshirt..hee hee!


  5. Shopping Adventures

    July 11, 2012 by Julie Moon

    I have been shopping and shopping lately….for what you say?  Swimsuits.  This has been the most confusing year ever for me.  Not only do I have completely different size and shape breasts but my backside is shaped all differently around my hips. I have been totally lost when I’m shopping.  I feel like I am shopping for the first time.  I ended up buying TONS of stuff online and then taking back what didn’t fit.  Lands End has been my hero.  I also have a great friend who brought over piles of her swimsuits and let me try them on and she even let me borrow a suit for our vacation.  There is nothing quite like feeling good in a swimsuit.  I was so grateful to get to that point in my recovery.  I’m still not done and I have some things I dislike or need fixed on both breasts still….but I think I totally rocked the swimsuit at the beach.   I guarantee there wasn’t a person there who could tell the difference.  To all my fellow BRCA sisters…you’re going to look HOT when you get those darn drains out and get all those holes healed up…it really does happen!

    The summer has been so busy with things going on for the kids and vacation that I haven’t really thought about what lies ahead for me and my body.  I got a card today in the mail that I need to schedule a follow up with my breast surgeon.   I will probably plan a day trip to Charleston once the kids are in school again to see Dr. Baron and Dr. Craigie.  It’s almost time to map out my next steps whether they are this year or later.


  6. Double The Trouble

    June 2, 2012 by Julie Moon

    Well I woke up this morning with a stomach bug.  Seriously universe…give me a break!  I am finally feeling a bit better but goodness can I please feel great soon.  I have had insomnia the past three nights…I need no more of that either.  I did however have an awesome reader, another of Dr. Craigie’s patients email me yesterday and gave me lots of encouraging messages.  It was great.  I do feel better about getting it all out there and now I can just move on and get to healing up.   I also had another friend bring over some swimsuits for me to try on.  It’s unusual for trying on swimsuits to be fun but I do have to say that was a good highlight of the day.  There are some “perks” to all this surgery.


  7. Stage Two In My Rear View Mirror

    May 25, 2012 by Julie Moon

    I never tire of seeing this beautiful city.  Charleston in my heart is a place of healing.  It is a place of happiness for me.  It was just four short months ago that my life took such a turn here in Charleston.  I made a very tough decision to do something radical to ensure a life free of breast cancer.  And this past week I was able to return to Charleston for the stage two of my reconstruction.

    Two of my very best friends packed up and drove me to Charleston.  My mom couldn’t leave until Tuesday so these wonderful women drove me down for my preop consult.  We then had the opportunity to meet someone who is in the process of her reconstruction as well.   The mother of a good friend of ours who I referred to Dr. Kline and Dr. Craigie. She’s had some obstacles to overcome in her recovery but it was so inspirational to see her and hear her express her gratitude for leading her to Charleston.

    Stage two was lots easier than stage one.  My surgery was only 5 hours instead of 11.  However it was outpatient so as soon as I was in recovery they were waking me up and trying to get me going.  I felt so groggy.  The way you feel when you’re asleep and dreaming and trying to wake up in your dreams.  Everything is blurry and impossible.  It’s so very frustrating to be in that state.  Everytime I sat up my face went pale and I thought I would pass out.  My friend Meg and my mom looked at each other with concern…how in the world were they going to get me into our hotel room.  Eventually they did it…they got me settled in and I slept most of the rest of the day. Right before they got the call that I was in recovery they were preparing to order sandwiches…so their lunch got delayed until dinner.  Sorry ladies!

    This stage they revised my scars on my breasts and recreated the nipple that I lost in stage one.  Dr. Craigie also revised the ends of my donor site scars so they are now flat instead of creating “dog ears”.  Some more contouring was done so that everything was smooth and even.  I am very sore this time but much more mobile.  I still have restrictions for about 3 weeks and will be resting and recovering at home.  I feel so happy with the results.  I still have a bit of a road of healing, getting these wounds to close up completely and some time getting these scars to fade.  I still may do another revision on my donor site in the future but I won’t be doing anything until the fall.  Oh and the best part of stage 2…no drains!  I do however have to wear compression garments for the next three weeks…which makes me a bit nauseous.

    I’m incredibly tired and my body is sore…I can hardly believe that I have two stages of surgery behind me now.  I have already been able to connect with several women locally who are BRCA + and some others long distance via this blog.  It makes me so happy to know that my journey gives strength to these other women.

    My mom and I having breakfast the day after surgery at IHOP.


  8. Bandage Free and 50 days

    April 2, 2012 by Julie Moon

    Would you believe that tonight is the first night I will go to bed bandage free since my surgery on February 1st!   Two month anniversary today and I am so grateful for this milestone.   It is so amazing to be closed…not oozing, leaking, bleeding, dripping, sticking….nothing but normal!  Normal…haha that’s a good one.  But really I do feel great.  I’m grateful that my twice daily ritual of changing my bandages gets the month of April and most of May off.   What a big deal!  This certainly wasn’t anything quite as epic as finishing up with my drains…omg I hated those things but it is good.   We have a long long way to go before I look “normal” again but I have faith and I know it’s going to happen.

    And guess what…it’s 50 days until my next surgery.  I’m so excited about this one.  I’m so excited about getting put back together and having nice round breasts instead of these odd shaped ones I have right now.  I’m so excited about having two nipples.  I’m so excited about losing the skin flap from my donor fat site.  What a big day it will be!


  9. Free Webinar on Natural Breast Reconstruction

    March 29, 2012 by Julie Moon

    The Center for Natural Breast Reconstruction will be having a free webinar on Thursday, April 12, 2012 7:00 p.m. ET / 4:00 p.m. PT

    Sign up here for the free webinar: http://breastreconstructionnetwork.com/rightforme/

    From their website:

    When you join us on April 12, you’ll discover…

    • Exactly what natural breast reconstruction is and whether you’re a good match for the procedures we offer.
    • What all the acronyms mean…DIEP, GAP, TUG, SIEA.
    • What you can expect in terms of hospital stays, recovery time, and scarring.
    • Answers to insurance questions relating to breast reconstruction. Our insurance specialist will be on hand during our Q&A.
    One in eight women in the U.S. will be diagnosed with breast cancer at some point in her life.

    Take Control of Your Life!


  10. Stage 2 on the books

    March 28, 2012 by Julie Moon

    Today I called and scheduled my stage 2 of surgery.  It will be on May 22nd in Charleston, SC.  Same docs, same hospital, same beautiful city…this time I’m really excited.  This surgery will be outpatient but I do have to be there a day on either side…possibly two days post surgery in town.   In stage one they left an oval shaped piece of skin from my donor site (yes my booty) attached to the fat tissue they used to create my breasts…so I have that skin on my breasts now.  Obviously none of you have seen it but it’s something I see every day.  In stage 2 they will remove that skin and I will be left with one short scar out to the side of my breast.  They will also make sure all the fat tissue has survived and remove any that hasn’t.  They will recreate my left nipple which didn’t survive the surgery (out of that skin flap…fascinating right?).  They will also do some contouring to make sure the breasts are the size and shape that looks best.  I do not think I will have any drains.   Hopefully this will be a piece of cake compared to stage 1.  If all heals well my breasts will be finished…done! I am so excited!

    It’s amazing how much I have become accustom to my new breasts.  At first it really felt like they were foreign objects on my chest.  I had such a hard time breathing and being able to stay calm.  Now even though I don’t really think I have regained any sensation in the breasts that I didn’t have when I first had surgery they do feel more normal.  What a blessing that is.  It’s not a concept that I can even accurately describe in words…if you’ve been there…you understand.  I’m growing and changing just like everything in life….grateful for these plants that were sent to me that remind me of just that.

    Did I mention I’m so excited?!!!!!