April 11, 2017 by Julie Moon
I received an email last week. It’s really amazing to me how important the work of sharing your story is to people. This email really makes me so very happy. Just an email from a mutual friend who wanted to tell me about her journey. Yes, I have written this blog for my daughters…but I also write it for every woman who just needs some answers. Peace to you all!
Thanks to your mom sharing her experience with me and letting me know about your website, I am scheduled for surgery with Dr. Craigie on July 19th.
I really didn’t think I wanted to do reconstructive surgery. A double mastectomy and 4 rounds of chemo took a toll on me back in 2014. But after meeting with Dr. Craigie in November of last year, I knew I had found the right surgeon . I felt at peace after my husband and I talked extensively with him about the different reconstructive options available through his practice.
I just wanted to let you know how grateful I am for your openness about your journey.”
Category The Journey, Uncategorized | Tags: blessings,BRCA,breast cancer,charleston,decisions,friends,Surgery | No Comments
July 3, 2014 by Julie Moon
Someone showed me this video this week and I really loved how it explained the differences between all the different methods of reconstruction. I thought this would be helpful for those out there researching their options.
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April 6, 2014 by Julie Moon
So I met with the gyn…she had lots of great information for me. First we talked about the oopherectomy itself and we actually talked about a study that had been done recently that suggested removing the fallopian tubes and not the ovaries was a good preventative step. She copied the article and I am going to read it and see what my thoughts are on this. We discusses hormone replacement and she explained bioidenticals and where the raised interested in compounded medicines came from. When I do remove my ovaries we will have to test out different things to see what makes me feel most normal. There will be some bumps along the way but she assured me the she felt confident we would figure it out.
She said to just let her know where to be and when I was ready and she’d take whatever out that I wanted. Ha. We can always continue with surveillance. I am monitoring my CA125 levels each year and I can also request to have ultrasound done to just look at things. I will be 37 this year….decisions decisions. I have no idea what is a “natural” menopause age for women in my family.
Category Uncategorized | Tags: hormones,nerves,oopherectomy,ovaries,recovery,surgeon,Surgery | No Comments
March 28, 2014 by Julie Moon
Sometimes I like to ignore the fact that I have a BRCA 1 mutation. The truth is that I actually forget. I sometimes even forget that I have had 4 operations to rid my body of any risk of breast cancer. I never forget when I’m undressed but fully clothed…I forget. I have felt brave, smart and proactive while dealing with my mastectomy and reconstruction. Now I must deal with the other risk factor that BRCA 1 carries. I must face the fact that I have a super high risk of ovarian cancer. And not only that I have a risk but there really isn’t any great system for monitoring ovarian cancer at this time. Most ovarian cancer is caught late and the risk is just too great for me. How incredibly sad would it be for me to do all the work I have to rid myself of breast cancer but be too scared to get my oopherectomy and then die from that. I could never forgive myself. So…April 1st…I have an appointment with my fabulous GYN to discuss my options. I have researched hormone replacement and yet I still feel a bit confused. I’m 36 and still have some time until menopause. I’m scared of my body getting out of control. I’m scared of gaining weight. I’m scared of my eyesight getting worse. I’m scared of my libido drying up. I’m scared of feeling old and looking old. Thankfully I’ve gotten over the fear of what it will cost because it always costs lots and I just pay it off as I can. I do not fear recovery because heaven knows I’ve recovered from worse and I have an amazing village on my side. Time to step up and get this done!
Category Uncategorized | Tags: BRCA,decisions,emotions,oopherectomy,plans,Surgery | No Comments